Showing posts with label Parent carers. Show all posts
Showing posts with label Parent carers. Show all posts

How to get an assessment from child disability social care (Wales).

 

How to get an assessment for your child from child disability social care (Wales)

Many parents know long before any service becomes involved that their child’s disability is affecting daily life. What is often unclear is how to access child disability social care, what triggers an assessment, what support it can and cannot provide, and how long things are supposed to take.

This guide explains how the system works in Wales, who can ask for an assessment, what ages are covered, how adaptations and support are arranged, and what happens as children approach adulthood.

The aim is clarity. Clear information early can prevent crisis later.


What is child disability social care?

Child disability social care sits within your local authority’s children’s services. Its role is to assess whether a disabled child and their family need care and support under the Social Services and Well-being (Wales) Act 2014.

It does not diagnose conditions and it does not replace education provision. Social care focuses on how disability impacts everyday life, family wellbeing, safety, and the sustainability of care.

Support may include:

  • short breaks or respite

  • practical help in the home

  • direct payments or a personal budget

  • family support services

  • planning for the transition to adulthood


Who can ask for an assessment?

In Wales, any of the following can request a child disability assessment:

You do not need a diagnosis first.
You do not need school permission.
You do not need to wait until things fall apart.

If disability is affecting your child’s wellbeing or your family’s ability to cope, you are entitled to ask.


How to request an assessment

Contact your local authority children’s services and ask for:

a care and support assessment for a disabled child under the Social Services and Well-being (Wales) Act.

You can do this by phone, online form, or email. If writing, keep it factual and focus on impact, not labels.

Helpful examples include:

  • constant supervision needed for safety

  • inability to leave the house safely

  • severe sleep disruption affecting the family

  • distress at school spilling into home life

  • significant impact on siblings

  • parental exhaustion affecting wellbeing

This is not the moment to minimise or put on a brave face.


What happens next?

The local authority may:

  • carry out initial screening

  • ask follow-up questions

  • request reports

  • speak to school or health professionals

If needs appear significant, this should move to a full assessment.

A full assessment usually involves:

  • discussing daily routines

  • understanding what is hard and why

  • identifying what support is already in place

  • exploring what would reduce risk or pressure

Outcomes may include:

  • no further action with signposting

  • short-term support

  • ongoing services

  • direct payments or a personal budget

  • transition planning


Timescales: what parents should realistically expect

Waiting is often the hardest part.

In Wales, there are no fixed statutory deadlines for child disability social care assessments. The law requires local authorities to act promptly, proportionately, and within a reasonable timescale, based on the level of need and risk.

This flexibility exists so that urgent situations can be addressed quickly and more complex situations can be assessed properly.

In practice, many local authorities work to internal benchmarks such as:

  • initial screening within a few weeks

  • full assessment completed over several further weeks once accepted

These are practice expectations, not legal guarantees. What matters is whether the authority is:

  • actively progressing the assessment

  • communicating with you

  • able to explain any delay

Where needs are urgent or family wellbeing is deteriorating, support can be put in place before a full assessment is completed.


Personal budgets and direct payments: managing expectations

A personal budget is not compensation and not an open-ended fund. It exists to meet assessed care and support needs.

It may cover:

  • short breaks or respite

  • support workers for care needs

  • activities linked to wellbeing or safety

  • support that helps sustain family life

It will not usually cover:

  • education costs

  • private therapy replacing NHS provision

  • school tuition or tutors

  • general household costs

  • support unrelated to assessed need

Social care must be able to show that any funded support meets identified need and represents appropriate use of public funds. Clear expectations early help prevent disappointment later.


What social care cannot do (and why this matters)

Being clear about limits can prevent frustration and conflict later on.

Child disability social care cannot:

  • diagnose medical or developmental conditions

  • replace NHS health services

  • fund education, tuition, or school-based provision

  • provide private therapy in place of NHS pathways

  • resolve disputes with schools

  • act as an enforcement body for other services

Social care’s role is to assess care and support needs and consider what support may reduce risk, sustain family life, and promote wellbeing.

When expectations are aligned early, assessments are usually more constructive and less emotionally draining for everyone involved.

_______________________________________________________

Home adaptations and specialist equipment

Home adaptations and specialist equipment are arranged through a joint health and social care process.

Children’s Occupational Therapy (OT) assesses the child and identifies what adaptations or equipment are needed and why, based on safety, access, and daily functioning.

Once OT recommendations are made, social care is responsible for funding and arranging the equipment, adaptations, or building work.

Parents can usually self-refer to children’s OT via their local health board website. OT determines need. Social care delivers the practical provision.


Education and transport: where responsibility sits

Transport is a common source of confusion.

  • Up to age 16, school transport is usually managed by the local authority education department.

  • Post-16, arrangements vary.

  • Where a young person has ongoing care needs, adult social care may become responsible for transport as part of a care and support plan.

  • College transport is often assessed separately and is not automatic.

As your child approaches 16, it is reasonable to ask:

  • who is responsible for transport

  • when responsibility changes

  • how arrangements will be reviewed during transition

Do not assume provision will roll over without reassessment.


Ages and transition to adult social care

Adult services:

  • focus more on the individual than the family

  • apply different eligibility criteria

  • often feel more functional and less relational

Early planning helps prevent gaps.


Team Around the Family (TAF): what parents should know

A Team Around the Family meeting is intended to coordinate support and prevent escalation. It is not automatically a child protection process.

However, it is a point where parents should be attentive.

Parents are entitled to:

  • know why a TAF is being called

  • see the agenda

  • understand what concerns are being addressed

  • ask what would escalate involvement and what would close it

If the focus remains on support and unmet need, TAF is working as intended. If language shifts towards monitoring or parental blame, it is reasonable to ask for clarity and to keep records.


If things stall: what parents can do

If progress feels slow, follow up calmly. Delays often reflect workload pressures rather than decisions about your child.

You can ask:

  • what stage the assessment is at

  • what information is outstanding

  • who the allocated worker or team is

  • when the situation will be reviewed

A brief written follow-up is often helpful. For example:

I am checking in to understand where we are in the assessment process and what the next steps and likely timescales are. Our child’s needs remain significant and we want to ensure matters continue to move forward.

Seeking clarity is not being difficult. It is part of working constructively with services.


Who does what? A quick guide for parents (Wales)

AreaWho is responsibleWhat they doWhat they do not do
Child disability assessmentChildren’s social careAssesses need for care and supportDiagnose conditions or provide education
DiagnosisNHS health servicesAssess and diagnoseDecide social care eligibility
Occupational TherapyNHS OT serviceIdentifies needed adaptations and equipmentFund or install adaptations
Home adaptations and equipmentSocial careFunds and arranges provision following OT adviceDecide clinical need
Personal budgetsSocial careFunds assessed care and support needsCover education or unrelated costs
School transport under 16Education departmentAssesses and provides transportContinue provision post-16
Post-16 transport (where care needs exist)Adult social careMay fund transport as part of care planAutomatically roll over school transport
Transition planningChildren’s and adult social carePlan transition from around 14Guarantee identical support post-18
TAF meetingsMulti-agencyCoordinate supportAct as child protection without clarity

A note on carers’ assessments

When a child has significant additional needs, parents and carers are often carrying far more than they realise.

Under Welsh law, parents and carers are also entitled to an assessment in their own right if caring is affecting their wellbeing. This is known as a carer’s assessment.

A carer’s assessment looks at:

  • physical and mental health

  • exhaustion and sleep

  • ability to work or study

  • impact on relationships

  • sustainability of the caring role

You do not need to be at breaking point to ask. In fact, asking earlier can help prevent crisis.

Carer support may overlap with child support, but it can also stand alone. It is reasonable to ask whether a carer’s assessment would be appropriate alongside your child’s assessment.

______________________________________________________


Final reassurance

Requesting a child disability social care assessment is not a failure and not an accusation. It is about recognising when disability affects family life to the point where early support can prevent crisis later on.

If you feel you are carrying too much, that feeling is usually valid.


___________________________________________________________________________________


Further reading and source guidance (Wales)
The links below are official Welsh Government and NHS guidance for parents who want to understand the legal and policy framework behind child disability social care.


Social Services and Well-being (Wales) Act 2014 (Law Wales hub)
https://law.gov.wales/social-services-and-well-being-wales-act-2014

Further legislation, codes and guidance made under the Act (Law Wales hub)
https://law.gov.wales/social-services-and-well-being-wales-act-2014-further-legislation-codes-and-guidance-made-under-act

Assessing care and support needs of individuals: Code of Practice (Gov.wales page)
https://www.gov.wales/assessing-care-and-support-needs-individuals-code-practice

Part 3 Code of Practice PDF (direct)
https://www.gov.wales/sites/default/files/publications/2019-05/part-3-code-of-practice-assessing-the-needs-of-individuals.pdf

School transport (Gov.wales topic hub)
https://www.gov.wales/school-transport
Home to school transport risk assessments guidance (PDF)
https://www.gov.wales/sites/default/files/publications/2018-03/guidance-on-home-to-school-transport-risk-assessments.pdf
Learner travel operational guidance 2025: consultation (Gov.wales)
https://www.gov.wales/learner-travel-operational-guidance-2025

National multi-agency practice framework for children’s services (Gov.wales HTML)
https://www.gov.wales/national-multi-agency-practice-framework-childrens-services-html
Families First: guidance for local authorities (PDF)
https://www.gov.wales/sites/default/files/publications/2019-07/families-first-guidance-for-local-authorities_0.pdf


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Learn Without Limits CIC provides general information and guidance only. We do not provide legal or medical advice. Families should seek advice from appropriate qualified professionals where needed


THE INVISIBLE WORKLOAD THAT SCHOOLS NEVER SEE

 

THE INVISIBLE WORKLOAD THAT SCHOOLS NEVER SEE


The Hidden Reality of ALN Parenting in Wales and Why It Deserves Recognition

Schools see a child for around six hours a day.
Parents see every hour before that and every hour after.

They see the morning anxiety, the exhaustion after school, the sensory overload, the masking, the meltdowns, the shutdowns, the scripts rehearsed at night, the rituals holding everything together, and the emotional cost that never makes it into a behaviour log or IDP review.

This is the invisible workload that shapes the daily reality of thousands of ALN families in Wales.

And it is enormous.


⭐ Schools See Behaviour. Parents See the Why.

Our November deep research confirmed the same pattern found in Welsh Government mental health studies, the Guardian’s recent report on anxiety and bullying, and from the lived experiences of our own community:

Children who cope at school often fall apart at home because they have been holding it together all day.

This is not a behaviour problem.
It is a stress and energy problem.

Teachers see a child trying their best.
Parents see the cost of that effort.


⭐ The Evening Shift: What Happens When School Ends

Once the school bell rings, the invisible workload begins.

Families manage:

  • the silent car journeys home

  • sensory overload

  • refusal to eat due to exhaustion

  • the shutdown or meltdown after masking all day

  • comforting a child who does not understand why they feel so distressed

  • helping siblings affected by their brother or sister’s needs

  • bedtime anxiety

  • homework battles

  • panic about group work

  • fear of PE

  • fear of being called on to speak

  • fear of bullying

  • stomach aches from tension

This work is continuous.

It does not appear on the school’s radar.
It is not written in a behaviour log.
It is not part of the IDP.

But it shapes every part of the child’s life and their ability to attend school at all.


⭐ The Cost of Living Crisis and the Extra Cost of Disability

Disabled families in Wales spend far more than non disabled families.
Our research aligns with Carers Wales, Scope and ONS findings.

Higher unavoidable costs include:

  • specialist foods

  • continence supplies

  • sensory suitable clothing

  • heating for pain management or temperature regulation

  • frequent laundry

  • taxi transport when public transport is not accessible

  • medical equipment

  • adapted bedding

  • home repairs

  • higher electricity needs

  • prescription replacements

  • travel to out of county hospitals

These are not luxuries.
They are essential.

And they create a financial burden that schools do not see.


⭐ The Overlooked Groups: Invisible Work Times Ten

Most ALN discussions in Wales focus on autism or ADHD.
But many disability groups carry heavy invisible workloads that receive almost no public attention.

We name them clearly here.


⭐ Visual Impairment Needs

Children with vision issues often need:

  • frequent replacement lenses

  • prism lenses

  • anti glare coatings

  • transitions lenses

  • specialist frames

  • recurring prescription updates as they grow

NHS vouchers cover only a fraction of the real cost.
Schools rarely see this burden or the visual fatigue these children bring home.


⭐ Hearing Loss and Auditory Processing Differences

Parents support:

  • hearing aid maintenance

  • frequent mould replacements

  • device repairs

  • listening fatigue

  • ENT appointments

  • teaching extended family how to communicate accessibly

  • creating quiet spaces at home

Listening fatigue is real.
Schools seldom see the exhaustion that follows.


⭐ Learning Disability and Global Developmental Delay

Families spend hours:

  • breaking down tasks

  • repeating skills

  • using visuals

  • teaching independence step by step

  • providing life skills practice

  • adapting routines

  • modifying homework

This labour is foundational and constant, yet invisible.


⭐ Communication Disability and AAC Users

Parents supporting AAC users must:

  • program vocabulary

  • model language daily

  • maintain communication boards

  • update software

  • teach extended family to use AAC

  • support transitions with visuals

AAC is not a device.
It is a language.

And parents are the language teachers.


⭐ Physical Disability and Home Adaptations

Parents supporting mobility needs manage:

  • manual handling

  • wheelchair repairs

  • continence routines

  • accessible routes

  • hoists

  • splints and braces

  • hospital transport

  • home adaptations often delayed for months or years

Even a simple outing requires a strategic plan.


⭐ Chronic Illness and Medical Fragility

Families supporting children with diabetes, epilepsy, asthma, sickle cell, gastrointestinal disorders, heart conditions and other chronic illnesses manage:

  • blood sugar monitoring

  • emergency medication

  • pain management

  • infection risks

  • consultant appointments

  • strict routines

  • night time checks

  • complex home care routines

This is life sustaining work.

And it is invisible to the school day.


⭐ Rare Diseases and Undiagnosed Conditions

Families with children who have rare or undiagnosed conditions often face the steepest road.

They must:

  • coordinate multiple clinics

  • track symptoms

  • educate professionals

  • push for referrals

  • manage uncertainty

  • navigate systems unfamiliar with their child’s condition

They often fall through gaps because they do not fit neatly into a diagnostic category.


⭐ Parents Do Not Want to Be Helpless Service Users

Parents do not want services to “fix” their child.
They want tools, clarity and partnership.

They want:

  • understanding

  • calm routines

  • reduced distress

  • scaffolding for independence

  • a clear pathway to adult life

  • systems that listen

  • professionals who believe them

  • environments that adapt

This is the social model of disability in action.

But in Wales, the social model is spoken about more than enacted.
Families end up filling the gaps with unpaid labour.


⭐ We Are Working on Future Releases of the ALN Parent Guide App to Include

We are not just naming this workload.
We are actively building tools to help families manage it with confidence and clarity.

Future releases of the ALN Parent Guide App will include:

✔ emotional load tracker
✔ parent wellbeing prompts
✔ home to school communication toolkit
✔ sensory and anxiety pattern mapping
✔ printable invisible workload summary for IDP reviews
✔ peer community support
✔ transition to adulthood toolkit
✔ modules for chronic illness, mobility needs, vision impairment, hearing loss and rare conditions

These tools will reduce the invisible workload and help families advocate with clarity and confidence.


⭐ Conclusion

The invisible workload is real.
It is physical.
It is emotional.
It is medical.
It is financial.
It is exhausting.

Families deserve understanding.
Schools deserve a fuller picture.
And young people deserve systems that see the whole of their needs, not just the classroom version.

Learn Without Limits CIC will keep naming the truth and building tools that lighten the load.
No parent should carry this alone.

CARERS WEEK SPECIAL - When No One Talks to Each Other, Families Fall Through the Gaps

 

⭐ CARERS WEEK SPECIAL

When No One Talks to Each Other, Families Fall Through the Gaps



Why Poor Communication Between Services Hits Unpaid Carers the Hardest

Across Wales, thousands of unpaid carers shoulder the emotional, practical and financial responsibility of supporting children with Additional Learning Needs. During Carers Week, we want to highlight something every family in our community understands:

📌 Most of the system’s problems happen not because people do not care, but because the people who do care are not talking to each other.

When communication breaks down between schools, ALN teams, CAMHS, social care, transport, therapies, health boards, and local authorities, unpaid carers become the only ones holding it all together.

And the weight is enormous.


The “Joined-Up System” That Rarely Joins Up

Policy documents promise:

Parents often experience:

  • contradictory information

  • missing referrals

  • circular instructions

  • broken feedback loops

  • long delays

  • no single point of contact

When professionals do not pass information to each other, unpaid carers become:

This is not partnership working.
This is a recipe for burnout.


How Communication Failures Impact Families

Parents become the “key worker” by default

Families tell us the same thing over and over:

“If I do not chase it, nothing happens.”

Parents are left tracking:
🧩 who said what
🧩 when it was said
🧩 what was agreed
🧩 who is responsible
🧩 who is missing from the chain

This is unpaid labour, and a lot of it.

Decisions are made without parents present

Carers frequently discover that:

  • decisions were made at meetings they weren’t invited to

  • schools assumed health would update them

  • health assumed education had spoken to the family

  • the LA assumed school had communicated everything

This deepens anxiety and erodes trust.

Crisis becomes normal

When nothing is coordinated until the child is already in distress, families live permanently braced for the next emergency appointment or phone call.

Chronic stress becomes normalised.


⭐ A Practical Toolkit for Parents and Unpaid Carers

These strategies protect your emotional well-being and give you a clearer record when systems break down.

1. Never make a phone call when an email will do

Phone calls disappear. Emails do not.

If you must phone, follow up with:

“It is my understanding that on X date, Y was agreed.”

This protects you later.

2. Always expect to need evidence later

Keep:

  • dates

  • names

  • times

  • emails

  • screenshots

You will thank yourself later during IDP reviews, transitions, or disputes.

3. Expect to become the “key worker” from day one

It shouldn’t be this way, but planning for it reduces the shock and frustration.

4. Do not be afraid to make a Subject Access Request (SAR)

A SAR lets you see:

  • reports

  • meeting notes

  • internal emails

  • decisions

  • referrals

  • safeguarding records

  • case history

How to make a SAR (Step by Step)

Step 1 — Email the Data Protection Officer

“I am making a Subject Access Request under the Data Protection Act 2018.
Please provide all records, emails, notes and communications relating to me / my child [Name, DOB] between [date range].”

Step 2 — Attach ID
A driving licence or utility bill is fine.

Step 3 — Time frame
They must reply within one month.

Step 4 — Your rights
You may:

  • request corrections

  • challenge inaccuracies

  • ask for missing documents

  • complain to the ICO if delayed

SARs often reveal missing referrals or misunderstandings that explain why support stalled.

5. Use our FB group to vent and connect

Isolation harms wellbeing.
You are welcome to:

  • talk through difficult days

  • ask for advice

  • request help writing a script or letter

  • ask for help building a social story

  • request signposting

  • share emotional overwhelm

Community protects us. You do not need to carry this alone.


⭐ Carers Wales: Who They Are and How They Help

Carers Wales is the national organisation supporting unpaid carers.
They offer:

  • helplines

  • carers rights information

  • practical workshops

  • local carers centres

  • peer support groups

  • guidance on benefits, employment and wellbeing

  • Carers Emergency Cards (varies by area)

Find your local Carers Centre

Use the postcode search tool here:
https://www.carersuk.org/wales/help-and-advice/local-support/

Carers Wales is an essential source of support for many families balancing ALN responsibilities with work, caring for siblings, or navigating complex health and education systems.


⭐ Money Matters: Financial Support for Carers

Being a full-time unpaid carer often means:

  • giving up employment

  • reducing hours

  • losing career progression

  • absorbing increased household costs

It adds financial strain on top of emotional strain.

1. Check you are receiving all benefits you are entitled to

Use the Turn2Us Benefits Checker:
https://benefits-calculator.turn2us.org.uk

This tool identifies:

Families are often missing benefits worth hundreds of pounds a month.

2. Use MoneySavingExpert for budgeting help

Martin Lewis is one of the UK’s most trusted financial educators.
His team provides clear advice on:

  • reducing bills

  • debt relief

  • budgeting tools

  • special energy grants

  • cost-of-living advice

  • carers cost-of-living entitlements

Start here:
https://www.moneysavingexpert.com


⭐ Social Care Support for Disabled Children and Adults in Wales

1. What Child Disability Services can offer

Support varies by Local Authority but may include:

  • short breaks or respite

  • direct payments

  • equipment and adaptations

  • behaviour support

  • occupational therapy

  • family support workers

  • early help teams

  • social care assessments

  • emergency care plans

Families can request a Child in Need (CIN) or Disabled Child assessment under the Social Services and Well-being Wales Act.

Your child does not need a diagnosis to request support.


2. What Adult Disability Services can offer

This support is based on the person’s needs, not diagnosis.

It may include:

  • direct payments

  • supported living

  • personal assistants

  • college or day provision

  • employment and training support

  • independent living skills programmes

  • transport/travel training

  • respite and short breaks

  • assisted technology

  • social support

Every Local Authority must assess an adult’s needs on request.


3. When transition happens (Child to Adult Services)

In Wales, transition planning should begin at age 14.

Key rights:

  • A young person can keep their IDP until 25

  • Education, health and social care must plan transition jointly

  • Parents and the young person must be fully involved

  • Plans must consider education, health, housing, employment, and community support

  • No young person should be left without a plan between services

Many families do not know transition planning should start this early, which is why things feel rushed or chaotic later.


⭐ Conclusion

Unpaid carers hold together the gaps between education, health and social care.
They should not have to act as key worker, case manager and crisis responder all at once.

During Carers Week, and every week, Learn Without Limits CIC acknowledges:

  • the emotional load

  • the financial sacrifices

  • the exhaustion

  • the invisible labour

  • the strength

  • and the love that keeps Welsh families going

We see you.
We hear you.
And we will keep fighting for systems that actually communicate with each other — so our carers do not have to carry the entire load alone.



learnwithoutlimitscic.org

Get involved with building our App, which is built by parents and young people to answer the questions we ask, so that we get the information we need as we need it by providing new toolkits every month. 

Flood Update for ALN Families in Wales -Severe flooding hits Monmouth, Cardiff and Penarth overnight


 

Flood Update for ALN Families in Wales

Severe flooding hits Monmouth, Cardiff and Penarth overnight
Learn Without Limits CIC – 15 November 2025

Storm Claudia brought serious disruption across parts of Wales overnight. Monmouth, Cardiff and Penarth experienced flooding, road closures and temporary evacuations.
For ALN families, flooding can be especially difficult because it disrupts routines, removes safe spaces, affects sensory needs, and may limit access to mobility aids, medical equipment or communication devices.

Below is an updated list of affected locations, ALN focused support, a printable contact sheet and links to our previous flood posts from earlier this week.




Latest Flood Warning Locations Across Wales

(Source: Natural Resources Wales, 15 November 2025)
Live updates: https://flood-warning.naturalresources.wales/

Severe Flood Warnings

Danger to life

Flood Warnings

Immediate action required

Flood Alerts

Flooding possible (selected list)


Support for ALN Families in Monmouth, Cardiff and the Vale

Flooding poses extra challenges for ALN families. Children may struggle with the sudden changes. Teens may experience sensory overload. Adults and children may lose access to vital routines, equipment or safe spaces.

Here are practical contacts that may help if you are affected.


Printable Contact Sheet

(This section can be copied, saved or printed directly from your browser.)

MONMOUTHSHIRE

  • Council Switchboard: 01633 644644

  • Emergency Duty Team (out of hours): 0800 328 4432

  • Highways emergencies: 01633 644644

  • Monmouthshire Housing Repairs: 0345 677 2277

CARDIFF

PENARTH / VALE OF GLAMORGAN

  • Council Contact Centre: 01446 700111

  • Out of Hours Emergency Duty Team: 01446 725202

  • Housing Emergency Repairs: 01446 709300

NATIONAL

  • Floodline Wales: 0345 988 1188

  • Textphone: 0345 602 6340

  • Dwr Cymru Water Emergencies: 0800 052 0130

  • CALL Mental Health Helpline Wales: 0800 132 737


Grant support for emergency items

If you lose essential ALN equipment, clothing, mobility aids or sensory supports, try this excellent grant search tool. Many charities fund urgent replacements, especially for disabled children and adults:

Turn2Us Grants Finder:
https://grants-search.turn2us.org.uk/


Support from Learn Without Limits CIC

If you are affected by flooding, please tell us in the Facebook group.
https://www.facebook.com/groups/learnwithoutlimitscic

We cannot promise the world, and we cannot give what we do not have, but we can try to support our fellow ALN families in any way we can.

Sometimes another parent can lend or donate a temporary item.
Sometimes someone nearby has spare incontinence supplies.
Sometimes a member has an old wheelchair or stroller they no longer need.
Sometimes you may need help writing a social story, completing a form or finding local support.

And sometimes all you need is a safe space to vent without judgment.

You do not have to face this alone.
This community was built to support one another in exactly these moments.


Links to Earlier Flood Posts

To help you access everything in one place, here are the two posts we published earlier this week:

When Water Rises: Standing with Families in Wales

A deep insight into why flooding affects ALN families differently and how to prepare sensory supports, equipment and emotional scripts.
https://learnwithoutlimitscic.blogspot.com/2025/11/when-water-rises-standing-with-families.html

Foodbanks and Flood Relief for Families in Crisis

Includes details of emergency food support, disability focused relief schemes and short term grants.
https://learnwithoutlimitscic.blogspot.com/2025/11/foodbanks-and-flood-relief-for-families.html

Both posts contain additional ALN-specific advice that complements today’s update.


Final Message

Wales has faced a frightening night. Flooding is traumatic for any family, but for children and adults with ALN the disruption can be overwhelming.
You are not alone.
Reach out, share your situation, and let this community support you in whatever way we can.

Stay safe.
Stay connected.
We are in this together.