Showing posts with label long covid. Show all posts
Showing posts with label long covid. Show all posts

🌿 LONG COVID IN WELSH CHILDREN — PART 1 March

🌿 LONG COVID IN WELSH CHILDREN — PART 1

How Long Covid affects daily life, school attendance and your childs rights in Wales

A Learn Without Limits CIC Guide


Across Wales more and more parents are telling us the same story.
Their child caught Covid a long time ago but has never fully recovered.
Some days they manage a lesson or two, other days they crash completely. Many children look fine one moment and then are wiped out the next.

Despite this, many families feel they are not being believed or understood.
Some are told their child is anxious.
Some are told the problem is attendance.
Others feel dismissed entirely.

This guide aims to give you clear and confident guidance based on the system in Wales so that you can support your child without doubt or hesitation.

This is Part 1.
Part 2 will look at health services, referrals, mental health, tuition, social care and practical steps you can take straight away.


1. What Long Covid is in children

Long Covid describes symptoms that continue for many weeks or months after a Covid infection. It is recognised in children and young people. Symptoms can be physical, emotional or cognitive and they often fluctuate. A child can appear well one moment and then deteriorate quickly after school, exercise or even brief concentration.

Long Covid is not school refusal.
It is not a lack of resilience.
It is not a behaviour issue.
It is a genuine health condition that requires understanding, patience and a clear plan.


2. How many children in Wales are affected

At the moment Wales does not publish child specific Long Covid figures. This lack of official data is becoming a problem because families often assume the issue is rare when the truth is that Wales has simply not counted children separately.

Here is what we do know.

Public Health Wales has reported that around ninety six thousand people in Wales have experienced ongoing symptoms after a Covid infection. That is about three percent of the population.
(See Source 1)

The Office for National Statistics reports that among children who tested positive for Covid:
• around one in ten children aged two to eleven
• around thirteen percent of young people aged twelve to sixteen
still had symptoms at five weeks after infection.
(See Source 2)

Meta studies suggest that between eight and twenty percent of children experience ongoing symptoms after infection, depending on the definition used.
These symptoms often include fatigue, pain and cognitive difficulty.
(See Source 3)

So even though Wales does not currently publish child specific figures, the wider United Kingdom evidence makes it clear that many children are affected.


3. Can children be affected for years and can Long Covid cause disability

Parents ask this often because their child does not recover within the timeframes they were originally told.

3.1 Can Long Covid last for years

Yes.
Research shows that some children remain unwell for many months or years after infection.
Symptoms may come and go or remain steady over long periods of time.
(See Source 3)

3.2 Can Long Covid cause disability

Yes.
The United Kingdom Covid Inquiry has acknowledged that Long Covid can cause long term activity limiting illness in children and young people.
This includes fatigue, cognitive difficulty and reduced ability to take part in normal daily life.
(See Source 4)

In Wales, a long term health condition that limits daily life can meet the definition of disability. This means families may have important rights in education and social care.


4. What Long Covid looks like day to day

No two children are identical, but research and lived experience show clear patterns.

4.1 Physical symptoms

• severe and persistent fatigue
• shortness of breath
• headaches and muscle pain
• dizziness or difficulty standing
• relapse after small amounts of activity, known as post exertional symptom exacerbation
(See Source 3)

4.2 Cognitive impact

• difficulty concentrating
• slower processing
• reduced short term memory
• sensory overload
• trouble keeping up in lessons
(See Source 3)

4.3 Emotional and social impact

Children may feel anxious, frustrated or sad because they cannot keep up with friends or school.
Many lose confidence after repeated periods of illness or absence.
(See Source 3)

If this describes your child, you are not imagining it. These difficulties are widely reported in research and in families across Wales.


5. Why school becomes difficult and why it is often misunderstood

5.1 School requires sustained energy

Schools involve constant movement, concentration, noise and transitions.
A child with Long Covid may manage a short period but then crash for the rest of the day.
Some appear fine in school but collapse the moment they get home.

5.2 Misinterpretation of absence

The Covid Inquiry reports that children with Long Covid can experience long term limitations that affect attendance. These limitations are sometimes misunderstood by schools and attendance teams.
(See Source 4)

5.3 What schools should do

Schools should medically authorise absence where a child has a recognised health condition.
They should adapt expectations, provide rest breaks and work collaboratively with families.

Attendance pressure does not improve a health condition. In many cases it makes symptoms worse.

Internal link placeholder: Attendance guidance for families in Wales


6. Reduced timetables and flexi schooling

Parents often hear two terms and do not always know the difference.
Here is the clearest explanation.

6.1 Reduced timetables

A reduced timetable means the child attends school for fewer hours or fewer subjects.
It is intended to be a short term plan to support recovery.
It must be reviewed often.
https://learnwithoutlimitscic.blogspot.com/2025/12/reduced-timetables-in-wales-parent-guide.html

6.2 Some schools call reduced timetables flexi schooling

This creates confusion.
If a school tells you they are offering flexi schooling, sometimes they actually mean a reduced timetable.
These two arrangements are very different.

6.3 What flexi schooling actually is

Flexi schooling is a formal agreement between the school and the parent which allows part of the education to take place at home.
This can work well for children with Long Covid because it builds in rest days and pacing.https://learnwithoutlimitscic.blogspot.com/2025/12/flexi-schooling-in-wales-complete-guide.html


7. When Long Covid meets the definition of Additional Learning Needs

Under the Additional Learning Needs system, a child has ALN when they need support that is additional to or different from what is normally available.

Children with Long Covid often need:

• shorter school days
• supervised rest breaks
• adapted or chunked learning tasks
• reduced sensory load
• extra processing time
• planned rest periods
• home learning options
• coordinated support between health and education

7.1 What this means

Your child may be entitled to an Individual Development Plan known as an IDP.
An IDP can record the adjustments that your child needs in a clear legal document.

7.2 School IDPs and Local Authority IDPs

Some children will require a Local Authority IDP when the school cannot meet their needs alone.
This is often relevant for fluctuating or complex health conditions.

Internal link placeholder: How to request an IDP in Wales
Internal link placeholder: School versus LA IDPs


8. When education at school is not possible

Wales has a legal duty to provide suitable education for children who cannot attend school for medical reasons.

The Children Commissioner for Wales has raised concerns that some children receiving home tuition receive too few hours and that provision is not always suitable.
(See Source 5)

Education Other Than At School known as EOTAS can include home tuition, online learning or a blended arrangement.
The key point is that the education must meet the childs needs, not simply offer minimal contact.

Internal link placeholder: Understanding EOTAS in Wales


9. What comes next in Part 2

Part 2 will look at:

• paediatric Long Covid services
• mental health support
• how to request referrals
• what to do when systems are slow
• home tuition and hospital teaching
• social care rights
• how to request a child needs assessment
• template letters and ready made scripts
• a directory of trusted organisations

You deserve guidance that is calm, practical and rooted in Welsh law.
Part 2 will help you take confident steps forward.


Sources

  1. Public Health Wales. Long Covid surveillance data.

  2. Office for National Statistics. Coronavirus Infection Survey findings for children.

  3. Paediatric Long Covid meta analyses and symptom reviews.

  4. United Kingdom Covid Inquiry. Evidence pack on education and childrens social care.

  5. Children Commissioner for Wales. Education in Healthcare Settings Report.

🌿 LONG COVID IN WELSH CHILDREN — PART 2 March

 

🌿 LONG COVID IN WELSH CHILDREN — PART 2

Health services, exam adjustments, attendance support, tuition, social care and practical steps for families in Wales

A Learn Without Limits CIC Guide


Part 1 explored how Long Covid affects children and why school becomes difficult.
This second guide takes you through the systems that support your child.
Families often face slow referrals, confusing attendance messages, uncertainty around exams and a lack of clarity about their rights.

You deserve clear guidance that fits the Welsh system.
This guide provides it.


1. Health services for children with Long Covid in Wales

There is no single national paediatric Long Covid clinic. Provision varies across health boards. Some have structured pathways while others rely on general paediatric care.

1.1 What currently exists in Wales

Aneurin Bevan University Health Board
Provides the Paediatric Recovering from Illness Service, supporting children with persistent symptoms including fatigue and Long Covid. The team includes paediatric psychology, physiotherapy, occupational therapy and rehabilitation support.
(See Source 1)

Swansea Bay University Health Board
Provides a recovery and rehabilitation pathway for people affected by Long Covid, including children referred for fatigue and pacing support.
(See Source 2)

All Wales Covid Recovery App
A bilingual digital tool developed by clinical teams to support fatigue management, pacing, breathing and emotional wellbeing.
(See Source 3)

1.2 When to request referral

Request referral if symptoms:

• last beyond four to eight weeks
• affect your childs school attendance
• flare after activity
• affect learning or emotional wellbeing

Ask for all information to be recorded in your childs notes.


2. Mental health support

Children with Long Covid often experience emotional strain such as anxiety, sadness, frustration or loss of confidence.
This is common and supported by research.
(See Source 4)

You can access support through:

• paediatric psychology
• GP linked mental health practitioners
• counselling through school
• youth counselling services
• the All Wales Covid Recovery App mental wellbeing tools

Internal link placeholder: Mental health guidance for ALN families


3. Exam access arrangements for children with Long Covid

A clear explanation plus the legal context

Many children with Long Covid struggle with fatigue, cognitive overload, slower processing and symptom flare during cognitive effort.
This can make exams extremely challenging without adjustments.

Under JCQ regulations, any learner who experiences a substantial disadvantage in exams compared to their peers is entitled to Access Arrangements.
(See Source 6)

3.1 Common adjustments for Long Covid

• supervised rest breaks
• extra time
• use of a word processor
• separate room
• modified paper format
• smaller chunks of assessment
• permission to pause and recover
• more than one exam session in a day avoided where possible

Rest breaks are especially important because they allow recovery time without penalty.

3.2 The legal context in simple terms

JCQ regulations make it clear that:

• adjustments must reflect the learners normal way of working
• rest breaks do not require formal application (schools or exam centres can grant them directly)
• adjustments must be evidence based
• health conditions count as a valid need if they affect stamina, processing, memory, pain or concentration
(See Source 6)

3.3 Who arranges exam adjustments if the child is not in school

This is where many parents feel confused.
Here is the clear rule:

⭐ The exam centre is always responsible for arranging exam access arrangements.

Not the tutor.
Not the LA team.
Not the GP.
Not the EOTAS teacher.

Every child must be registered with an exam centre. That centre handles the JCQ paperwork and approves the adjustments.

3.4 Who the exam centre is in each situation

If your child is still on roll at a school (even if flexi schooling):
The school is the exam centre.
They must arrange exam access arrangements.

If your child is EOTAS:
The local authority must attach the child to an exam centre, usually:
• the previous school
• a PRU
• an EOTAS centre
• another school willing to accept candidates
• or a designated exam centre for medical needs

The LA is legally responsible for ensuring this is done because the child is still entitled to suitable education under the Education Act.
(See Source 5)

If your child is home educated:
The parent chooses the exam centre.
The chosen private exam centre reviews the evidence and arranges adjustments.

3.5 Evidence accepted by exam centres

• GP letter
• paediatric letter
• records of symptoms affecting stamina or concentration
• school or tutor observations
• record of relapses after cognitive activity
• any formal ALN or medical documentation


4. School attendance guidance for children with Long Covid

Families often receive mixed messages.
Some are told to push attendance.
Others feel pressured by attendance letters.
Some children are incorrectly labelled anxious.

4.1 Absence should be medically authorised

A child with a recognised health condition should not be marked as unauthorised when they are unwell.
Schools must record health evidence appropriately.

4.2 Attendance pressure can worsen symptoms

The Covid Inquiry confirms that Long Covid can cause long term activity limiting illness.
Pushing attendance can trigger relapse.
(See Source 4)

4.3 What supportive attendance practice looks like

• reduced timetable as a short term support
• planned rest breaks
• flexible starts
• remote learning options
• reduced sensory load
• supportive communication rather than pressure

4.4 What attendance teams must not do

Attendance teams must not:

• threaten fines for illness
• accuse the child of avoidance
• pressure families contrary to medical evidence
• ignore clinical information

Internal link placeholder: Attendance guidance for families


5. How to evidence medical need for schools and LAs

Provide:

• GP or paediatric letter
• notes showing daily impact
• evidence of symptom flare after activity
• record of fatigue patterns
• your own parent impact statement
• any ALN assessments

Schools and local authorities must consider this when planning provision.


6. Home tuition for medical needs

When a child cannot attend school for medical reasons, the local authority has a legal duty under the Education Act to provide suitable education.

6.1 What suitable tuition should include

• enough hours to maintain progress
• curriculum aligned teaching
• regular review
• coordination with health advice
• not merely token education

The Children Commissioner for Wales has raised concerns about inconsistent provision.
(See Source 5)

6.2 What to request

• clear plan for hours
• timeline for start
• mode of delivery
• link with ALN support
• regular review meetings

Internal link placeholder: Home tuition guidance  - EOTAS series?


7. Hospital tuition in Wales

Hospital tuition helps children with significant medical needs continue learning during treatment.

Learning may take place:

• on the ward
• in a hospital learning room
• through personalised plans for outpatient care

Ask your health board for details if your child spends time in hospital.


8. Social care support for disabled children

Long Covid can meet the definition of disability when symptoms significantly limit daily life.

Under the Social Services and Wellbeing Wales Act you can request a Child Needs Assessment.

This can provide:

• short breaks
• equipment
• transport support
• care support
• help with routines
• support for siblings
• emotional and practical support

Internal link placeholder: Child Needs Assessment guidance


9. Scripts for parents

Script for GP or paediatrician

My child has ongoing symptoms that began after Covid. These symptoms limit daily life and school attendance. Please record this and advise on referral to paediatric and therapy services.

Script for school

My child has a recognised health condition that affects stamina and concentration. They need flexible adjustments. Please ensure all absence is medically authorised.

Script for the local authority

My child cannot attend school for medical reasons. Under the Education Act they are entitled to suitable education. Please confirm the interim tuition plan and weekly hours.


10. Directory of trusted organisations (with clickable links)

These links will remain clickable in Blogger.

Long Covid Kids UK
Support for parents, resources, advocacy.
https://www.longcovidkids.org

Long Covid Kids Wales Community Groups
Welsh peer support for families.
https://www.longcovidkids.org/support-wales

Long Covid Wales
Support, campaigning and signposting for people in Wales.
https://www.longcovidwales.org

All Wales Covid Recovery App
Fatigue, breathing, pacing and wellbeing guidance.
https://www.covidrecoveryapp.wales


11. Closing words

Long Covid can leave families feeling exhausted, unheard and isolated.
But your child has rights.
Your child has options.
And you now have the knowledge to advocate confidently.

Learn Without Limits CIC stands with you.

You are not alone.


Sources

  1. Aneurin Bevan University Health Board. Recovering from Illness Paediatric Service.

  2. Swansea Bay University Health Board. Long Covid Rehabilitation Pathway.

  3. All Wales Covid Recovery App.

  4. UK Covid Inquiry. Evidence on Long Covid and children.

  5. Children Commissioner for Wales. Education in Healthcare Settings Report.

  6. JCQ Access Arrangements Guidance.

Specialist Interventions Under EOTAS in Wales - Part 1

 

Specialist Interventions Under EOTAS in Wales

Part 1: What Support Actually Exists and What It Does




📘 This is Part 4 of a 5-part series on EOTAS in Wales.

⬅️ Previous: Part 3 – What EOTAS Provision Looks Like  
https://learnwithoutlimitscic.blogspot.com/2025/12/eotas-in-wales-part-3.html

➡️ Next: Part 5 – Multi-Agency Working & Provider Support  
https://learnwithoutlimitscic.blogspot.com/2025/12/specialist-interventions-under-eotas-in_01577358569.html

When a child cannot access education in a school setting, families often begin searching for specialist interventions that might finally help. Parents want to know what exists, what works for their child, and what is actually available in Wales. Unfortunately, there is no single place where this information is explained clearly. Many organisations talk in general terms, but very few describe the real picture on the ground.

This guide brings everything together in one place.
It explains the specialist interventions used in Wales, who they suit, and how they differ. It is written for families, in plain language, and grounded in the lived experience of our peer support community.

Later, in Part 2, we explain which interventions are state provided, which exist only in the private or charity sector, and which usually require Tribunal.

For now, let us start by mapping out what is actually out there.


⭐ 1. Behaviour and communication based interventions

These interventions focus on communication, social connection, emotional regulation or behaviour that is linked to unmet need. Some are widely used in Wales. Some are rare. Some are only seen in specialist provision. The aim here is not to endorse or discourage any method, but to help parents understand what these approaches are and where they appear.


⭐ Intensive Interaction

What it is:
A relationship based approach that supports very early communication and social connection. It is often used with children who have significant learning disabilities or are in the earliest stages of communication development.

Where it is used:
Common in specialist schools and PMLD settings.
Rare in home based EOTAS unless Tribunal directs it.

Who it suits:
Children who communicate mainly through facial expression, sound, gesture or shared attention rather than spoken language.


⭐ The 5P Approach

Developed by Linda Miller, this approach focuses on understanding thinking patterns, predictability, planning and problem solving for autistic children and young people who experience rigid thinking or struggle with transitions.

Where it is used:
Occasionally recommended by educational psychologists.
Not widely commissioned, but respected by practitioners who know it.

Who it suits:
Children who become distressed or stuck when routines change or when required to think flexibly.


⭐ SCERTS

SCERTS stands for Social Communication, Emotional Regulation and Transactional Support. It is a framework often used in specialist schools and sometimes referenced in IDPs.

Where it is used:
Specialist schools and autism bases.
Rare in home tuition unless a specialist practitioner is involved.

Who it suits:
Autistic children who need structured support with communication and emotional regulation.


⭐ Positive Behaviour Support

A practical and person centred approach that focuses on understanding the reasons behind behaviour and reducing distress by addressing unmet need.

Where it is used:
Used in some specialist provisions and sometimes brought into EOTAS packages for children with complex behaviour needs.

Who it suits:
Children whose behaviour communicates discomfort, sensory overload, fear or confusion.


⭐ Picture Exchange Communication System (PECS)

A structured visual system that supports communication without spoken language.

Where it is used:
Specialist settings and sometimes EOTAS when tutors are trained.

Who it suits:
Children who benefit from visual communication.


⭐ Applied Behaviour Analysis (ABA)

ABA attempts to change behaviour through structured teaching. It focuses heavily on reinforcement and measurable behaviour change.

Important context:
The autistic adult community in Wales and across the UK campaigned strongly for ABA not to be adopted in national guidance. Concerns include masking, compliance training, potential emotional harm and the pressure to appear neurotypical rather than supporting genuine well being.

Where it is used:
Rarely funded in Wales.
Tribunal ordered only in exceptional cases with extensive expert evidence.

Who it suits:
A very small number of children.
Families seeking ABA usually access it privately.


⭐ Social communication programmes

These include social skills groups, friendship groups and communication coaching. They vary widely in quality depending on who delivers them.

Where they are used:
Some are offered by schools.
Some are included in alternative provision.
Many are run by private therapists or CICs.

Who they suit:
Children who want support with connection, communication or peer relationships.


⭐ 2. Less common or parent requested interventions

Parents often hear about approaches used in the United States or in other countries. Some of these are not part of the Welsh system, but families ask about them often, so we include them here for clarity.


⭐ DIR Floortime

A play based developmental approach that focuses on relationships and emotional growth.

Where it is used:
Very rare in Wales.
Usually only accessible privately.


⭐ Son Rise

A home based programme centred around intensive play sessions.

Where it is used:
Not commissioned by Welsh Government or Local Authorities.
Available only through private routes.


⭐ Pivotal Response Training

A behavioural method linked to ABA, used mainly in the United States.

Where it is used:
Not routinely commissioned in Wales.


⭐ Rapid Prompting Method

A controversial communication method that is not endorsed by educational bodies.

Where it is used:
Almost entirely private.


These approaches may appear in online discussion, but they are not typical components of EOTAS in Wales.
____________________________________________________________________________________

Section 2: Therapeutic and Health Based Interventions

Not all children who need EOTAS require intensive therapy, but many do need support that goes beyond academic teaching. Wales has a mixture of NHS provided services, Local Authority commissioned services, and a large private and charity sector. This section explains what families may encounter.


⭐ 1. Occupational Therapy

Occupational therapists support children with sensory needs, coordination, functional skills, independence and access to learning.

What OT can provide

  • Sensory assessment

  • Advice on regulation strategies

  • Support with handwriting and fine motor development

  • Recommendations for equipment

  • Strategies for daily living

  • Advice for tutors or school staff

What OT usually cannot provide

Direct sensory therapy is rarely delivered by NHS Wales. Families who want weekly sensory therapy often need to seek private support unless Tribunal directs otherwise.

Where OT is available

  • NHS services

  • Specialist schools

  • Occasionally as part of EOTAS if it is written into the IDP

  • Private therapy practices


⭐ 2. Physiotherapy

Physiotherapy supports children with mobility difficulties, muscle tone issues, physical disabilities or long term health conditions.

What physiotherapy can help with

  • Mobility and gait

  • Strength and coordination

  • Fatigue management

  • Access to safe movement programmes

Where physiotherapy is accessed

  • NHS community physiotherapy teams

  • Specialist schools

  • Private physiotherapy clinics

Physio is not always included automatically in EOTAS packages, even when children have physical needs. It must be written clearly into the IDP.


⭐ 3. Speech and Language Therapy

Speech and Language Therapy is one of the most commonly needed interventions, but one of the most inconsistently provided.

What SaLT supports

Where SaLT comes from

  • NHS speech and language services

  • LA commissioned SaLT in some counties

  • Specialist settings

  • Private therapists

  • Charity based communication support groups

Important note

Many families have had to appeal to Tribunal to secure adequate SaLT hours when NHS waiting lists are long or provision is too limited. Tribunal can direct specific hours and delivery methods.


⭐ 4. Mental health support and trauma informed approaches

Many children accessing EOTAS are experiencing anxiety, emotionally based school avoidance, trauma or long term stress.

What support may be included

  • Therapeutic tutoring with anxiety informed teachers

  • Counselling

  • Trauma informed youth programmes

  • Well being coaching

  • Emotional regulation work

  • Safe exposure and desensitisation sessions

Who delivers this

  • Some Local Authorities have specialist EBSA tutors

  • Some CICs offer trauma informed group programmes

  • Counselling is often accessed privately

  • Third sector organisations offer low cost or grant funded support

Important

CAMHS does not provide education and does not create EOTAS packages. However, a letter from CAMHS often carries significant weight in EOTAS decision making.


⭐ 5. Play therapy, art therapy and creative therapeutic approaches

Creative approaches can be powerful for children who have experienced trauma, anxiety or communication barriers.

Where these come from

  • Private practitioners

  • Charity sector

  • CICs

  • Specialist therapeutic settings

  • Rarely commissioned directly by Local Authorities

Why this matters

Parents often assume these therapies will be funded by the state. In reality, they usually are not unless Tribunal orders it or the child is in a very specialist placement.

Costs range from free to very expensive, depending on the provider.


⭐ 6. Acute and chronic medical needs

Children who have Long Covid, ME, chronic pain or fatigue based conditions sometimes need specialist health input to make education safe and manageable.

Support may include

  • Medical needs tuition

  • Fatigue management programmes

  • Micro learning sessions

  • Advice from consultants or specialist nurses

  • Home tuition with built in rest breaks

Where this support comes from

  • Local Authority medical needs services

  • NHS teams

  • Private fatigue specialists (not usually commissioned)

This area is still developing in Wales and many families report inconsistent practice.

___________________________________________________________________________________

SECTION 3A — Specialist Education Models

Some children cannot access a school environment but still need meaningful education that suits their needs, stamina and learning profile. EOTAS packages in Wales vary widely depending on the child, the Local Authority and what professionals recommend. Below are the models most often used.


⭐ Online Tuition

Online tuition is one of the most common components of an EOTAS package.

It is used when

  • a child has severe anxiety

  • leaving the house is not possible

  • sensory overload makes in person learning unsafe

  • medical conditions like Long Covid or ME cause fatigue

  • attendance at a building is not currently realistic

What it looks like

  • short sessions of one to one tuition

  • rest breaks built into the plan

  • personalised pacing

  • focus on core subjects

Important note

Online tuition is not the same as full time online schooling.


⭐ Full Time Online School

This is extremely rare in Wales and usually appears only when:

  • all attempts at in person education have failed

  • the child thrives specifically in online learning

  • medical or psychological needs make any physical setting unsafe

  • detailed evidence is provided by multiple professionals

  • the Tribunal directs it



⭐ Hybrid or Blended Provision

Many EOTAS learners receive a mix of approaches, for example:

  • online tuition

  • in person tutoring at a local centre

  • outdoor learning

  • community learning programmes

  • life skills sessions

  • therapeutic tutoring

This is increasingly common because it gives flexibility and allows provision to be tailored to the child’s stamina and interests.


⭐ Outdoor Therapeutic Education

Outdoor learning programmes are growing across Wales. These services are often delivered by charities or CICs and may include:

  • woodland learning

  • bushcraft

  • emotionally informed outdoor mentoring

  • sensory exploration

  • small group social sessions

Outdoor provision can be transformative for children who cannot tolerate the intensity and sensory demands of indoor learning.


⭐ Community Based Learning and Life Skills

This is more common for older teens. It includes:

  • cooking

  • shopping

  • budgeting

  • travel training

  • work experience

  • volunteering

These activities can help prepare the young person for adulthood, especially when academic learning has been disrupted.


⭐ Specialist Literacy or Dyslexia Support

This includes structured literacy programmes delivered by qualified dyslexia specialists. Some Local Authorities commission this, but many families access it privately unless Tribunal directs a specific method.


⭐ Specialist Numeracy or Dyscalculia Support

Rare but available where an educational psychologist identifies a specific learning profile and recommends targeted teaching.

___________________________________________________________________________________

SECTION 3B — Sensory Regulation and Assistive Technology Support

Many children who need EOTAS experience sensory difficulty, dysregulation or physical barriers to learning. Below are the interventions most commonly used in Wales.


⭐ Sensory Regulation Programmes

Occupational therapists sometimes design sensory diets or regulation plans. These may include:

  • movement breaks

  • deep pressure activities

  • calming strategies

  • sensory equipment

  • environmental adjustments

NHS Wales rarely delivers weekly sensory therapy.
Most families rely on advice rather than direct sessions, unless Tribunal directs specific provision.


⭐ Assistive Technology

Assistive technology can be life changing for learners who struggle with access, communication or stamina.

Tools may include

  • text to speech software

  • speech to text systems

  • screen readers

  • symbol based communication apps

  • eye gaze systems

  • adapted keyboards

  • touchscreen devices

  • visual supports

AbilityNet

AbilityNet is one of the best sources of information about assistive technology in the UK. They provide:

  • free expert advice

  • help identifying suitable tools

  • guidance on accessibility

  • suggestions for grant funding

  • support for digital inclusion

Many families in Wales have accessed equipment or software after consultations with AbilityNet.


⭐ Augmentative and Alternative Communication

AAC includes:

  • communication books

  • symbol boards

  • high tech devices

  • iPad based communication apps

  • eye gaze systems

Some children receive AAC support from NHS SALT teams. Others access it through specialist charities or private therapists.

___________________________________________________________________________________

SECTION 3C — Specialist Provision for Deaf and Vision Impairment

These services are essential and often misunderstood. They are legally required for learners who need them and can be included in EOTAS packages.


⭐ Teachers of the Deaf

Teachers of the Deaf provide:

  • communication support

  • advice on hearing equipment

  • adaptations to learning materials

  • guidance for tutors

  • direct teaching when needed

  • help with British Sign Language learning

They are employed by Local Authorities as peripatetic specialists.
Provision varies by county but is available throughout Wales.


⭐ British Sign Language Support

BSL support may include:

  • sign bilingual resources

  • communication support workers

  • access to BSL trained tutors

  • support for families learning BSL

Capacity varies, and availability depends on local staffing.


⭐ Teachers of the Visually Impaired

Teachers of the Visually Impaired may provide:

  • braille tuition

  • large print or tactile materials

  • mobility and orientation support

  • specialist equipment

  • assistive technology advice

They work closely with EOTAS tutors to ensure the curriculum is accessible.


⭐ Mobility and Habilitation Specialists

These specialists help children with:

  • safe movement in the community

  • cane skills

  • spatial awareness

  • navigation

  • confidence building

Provision is usually based within Local Authority vision impairment teams, sometimes supported by NHS.

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Section 4A: The Private and Charity Sector, Parent Safeguarding, and What Does Not Exist in Wales

When families first enter the EOTAS system they often expect that the Local Authority or the NHS can provide every type of help a child might need. In reality, Wales has a mixed landscape made up of:

  • state funded services

  • Local Authority commissioned services

  • private therapists

  • registered charities

  • community interest companies

  • individual practitioners

  • outdoor learning organisations

  • online providers

  • small specialist centres

Some of these services are excellent.
Some are affordable.
Some are life changing.
Some are extremely expensive.
And sadly, some are poor quality or exploitative.

This section helps parents understand what is available, how to access it, and how to stay safe.


⭐ 1. The private ALN marketplace in Wales

Wales has a lively private and charity based sector of ALN provision. This includes:

  • play therapy

  • art therapy

  • music therapy

  • specialist tutoring

  • trauma informed outdoor education

  • dyslexia or dyscalculia support

  • equine well being

  • counselling

  • anxiety coaching

  • social communication groups

  • assistive technology advice

  • life skills programmes

  • PDA informed mentoring

  • behaviour and regulation support

  • parent coaching

  • sensory sessions

Some services are free because they are funded by grants.
Some offer reduced cost sessions.
Some are extremely expensive.

Parents need clear, honest information before spending money.


⭐ 2. Why parents find peer feedback essential

Families in Wales often say that asking other parents is the most reliable way to understand whether a provider:

  • is safe

  • is experienced

  • is genuinely child led

  • is good with autistic learners

  • has realistic claims

  • offers value for money

  • understands sensory need

  • can adapt to anxiety or fatigue

  • communicates respectfully with families

This is where the Learn Without Limits CIC Facebook group is especially valuable. Members can ask:

Has anyone used this tutor, therapist or programme?
What was your experience?

Our long standing community includes parents who have worked with dozens of services over many years. Their honest and unfiltered feedback helps families avoid costly mistakes and protects children from approaches that may not be suitable.

Sadly, a small number of private providers do view desperate parents as a cash opportunity. Peer review is one of the strongest protections families have.


⭐ 3. What Local Authorities can tell you

Every Local Authority in Wales maintains a list of approved alternative provision providers. Parents are rarely told this list exists, but you can ask for it directly.

The list may include:

  • therapeutic tutors

  • outdoor programmes

  • small specialist centres

  • registered ALN tutors

  • CIC based interventions

  • charity run wellbeing groups

This list does not cover every private service in the area, but it is a helpful starting point.


⭐ 4. Grant funding for private support

For some families, applying for a grant is far less stressful than heading to Tribunal or attempting to fight for support through the state system. Grants cannot replace statutory duties, but they can make a real difference when a child needs something that the NHS or Local Authority cannot provide.

Useful grant routes include

  • Turn2Us grant search tool
    One of the best ways to find small or medium sized grants for therapy, equipment or specialist tuition. Many families in Wales have used Turn2Us successfully.

  • Family Fund
    Supports disabled children with equipment and wellbeing resources.

  • Local Community Foundations through WCVA
    Often fund small projects or urgent family needs.

  • AbilityNet
    Provides advice on digital accessibility and can direct families to grants for assistive technology.

  • Charity based hardship funds
    Some organisations linked to health conditions offer grants for therapy or specialist equipment.

Grant funding does not solve everything, but it can help reduce pressure and avoid debt at a time when parents are already stretched thin.


⭐ 5. Interventions that do not exist in Welsh EOTAS packages

Parents often ask about programmes they have seen online or heard about from friends in other countries. These approaches are not part of EOTAS in Wales unless funded privately:

  • full ABA programmes

  • daily sensory integration therapy

  • parent chosen therapy teams

  • Son Rise

  • DIR Floortime

  • neurofeedback

  • Rapid Prompting Method

  • intensive home based programmes

  • constant wraparound care

  • in home carers or nannies

  • twenty five hour per week therapy plans

  • daily psychology sessions

Families need clarity about this so they can set realistic expectations and make informed choices.


⭐ Section 4B: How to Judge Whether an Intervention Is Right for Your Child

Choosing a specialist intervention can feel overwhelming. Parents want to do the right thing, avoid wasting money and protect their child from approaches that might be unhelpful or unsafe.

Below are helpful questions to consider.


⭐ 1. Does this intervention meet my child where they are?

Some children need gentle, relationship led approaches.
Some need structure.
Some need sensory support.
Some need academic pace adjustments.
Some need emotional healing first.

If an intervention promises to fix everything quickly, this is usually a warning sign.


⭐ 2. What evidence supports this approach?

Families should look for:

  • practitioner qualifications

  • safeguarding policies

  • realistic claims

  • understanding of autistic communication

  • respect for neurodiversity

  • non coercive practice

  • alignment with your child’s needs


⭐ 3. What do other parents say?

This is where our LWL Facebook group comes into its own. Parents who have used a service will tell you:

  • what worked

  • what did not work

  • what the provider is really like with anxious children

  • whether the cost reflects the value

  • whether the service feels safe

Peer knowledge is powerful. You can connect with our peer support network here:- https://www.facebook.com/groups/learnwithoutlimitscic


⭐ 4. Can this be funded without causing stress or debt?

If the intervention is private, consider:

  • is there a grant that could help

  • is the cost sustainable

  • is this a short term boost or a long term plan

Sometimes a small number of private sessions can make a big difference. Sometimes state support is still necessary.


⭐ 5. Is this the right time?

If a child is burnt out, traumatised or exhausted, they may need rest and gentle support before beginning any structured intervention.

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📚 **EOTAS in Wales – Full Blog Series**


Part 1 – Introduction to EOTAS  

https://learnwithoutlimitscic.blogspot.com/2025/12/eotas-in-wales-part-1.html


Part 2 – How EOTAS Decisions Are Made  

https://learnwithoutlimitscic.blogspot.com/2025/12/eotas-in-wales-part-2.html


Part 3 – What EOTAS Provision Looks Like  

https://learnwithoutlimitscic.blogspot.com/2025/12/eotas-in-wales-part-3.html


Part 4 – Specialist Interventions Under EOTAS  

https://learnwithoutlimitscic.blogspot.com/2025/12/specialist-interventions-under-eotas-in.html


Part 5 – Multi-Agency Working & Provider Support  

https://learnwithoutlimitscic.blogspot.com/2025/12/specialist-interventions-under-eotas-in_01577358569.html