Empowering Every ALN Family in Wales: Beyond Autism and ADHD

 

Empowering Every ALN Family in Wales: Beyond Autism and ADHD

For families navigating Wales’s ALN (Additional Learning Needs) system, getting the right support can feel overwhelming – especially if your child’s needs are less understood. Although the ALN reforms (Wales) emphasize a “needs led” approachresearch.senedd.wales, we often hear that help only comes after familiar diagnoses like autism or ADHD are given. Many families of children with Dyspraxia, Cerebral Palsy or rare genetic conditions find themselves overlooked. Here at Learn Without Limits CIC, we know how isolating that can feel. We are a parent‑led community interest company, and our mission is to support every ALN family in Wales, ensuring no one is left on the sidelines.

Welsh ALN Reforms and Neurodiversity Focus

In practice, however, autism and ADHD often receive the lion’s share of attention and resources. For example, the Welsh Government recently announced £13.7 million to cut waiting times for autism and ADHD assessmentsgov.wales. A Welsh Government survey also found that around half of ALN learners were reported as autistic and about one-third had ADHD, while only “smaller proportions” of families mentioned conditions like dyspraxia or physical impairmentsgov.walesgov.wales. These figures underline how the system tends to centre on well‑known neurodevelopmental needs, leaving other conditions under the radar.

Overlooked ALN Conditions: Dyspraxia, CP and Rare Disorders

For many parents, it feels like only certain labels matter. Conditions that are more visible or widely publicised often attract more funding and sympathy. For example, the Welsh Government’s recent £20m ALN funding was ring‑fenced for building and updating sensory rooms, specialist equipment and classroomschildcomwales.org.uk – upgrades that directly benefit pupils with sensory sensitivities or obvious physical disabilities. Meanwhile, families of children with dyspraxia, dyscalculia or rare genetic syndromes often have little tailored support in school. They may face long waits for a diagnosis or therapy in rural areas, and struggle to find resources geared to their child’s needs. We believe every ALN need deserves attention – whether or not it makes the headlines.

Diagnosis Delays and Rural Gaps

Long waits for assessment are a Wales‑wide problem. For example, by mid‑2023 67% of children referred for an autism or ADHD assessment had already been waiting more than 26 weeksnation.cymru. In more rural health boards, it was even worse: Hywel Dda (serving Carmarthenshire, Pembrokeshire and Ceredigion) had an average wait of 75 weeks for a neurodevelopmental assessmentnation.cymru. This postcode‑by‑postcode variation can be stark. The Senedd’s Disabled Children’s Committee described Welsh provision as “patchy and inconsistent”, a postcode lottery for disabled childreneducationlawadvice.com. Families in under‑resourced areas tell us that referrals to educational psychologists or therapists can drag on for months, leaving children without the adjustments they need to learn. The law says support should start based on need, not a labelresearch.senedd.wales, but in reality families often must fight for every bit of help.

Learn Without Limits CIC: Support for Every ALN Family

At Learn Without Limits, we welcome every ALN family and condition. Our vision is that “Wales becomes the best place to grow up if you’re autistic, ADHD, or disabled”learnwithoutlimitscic.org – and by “disabled” we include children with dyspraxia, cerebral palsy, rare syndromes or any condition that affects learning. We understand families in these communities often feel left out, so we work to fill that gap. We provide clear guidance on the ALN law and IDPs, peer mentoring and support, plus friendly online Q&As and local meet‑ups – anything that helps you and your child get the support you deserve.

In addition, we’ve built a free Parent Guide App as a practical toolkit for ALN families. It offers printable IDP and letter templates, straightforward FAQs on Welsh ALN law, and links to community support and wellbeing resourceslearnwithoutlimitscic.org. It’s built on the real questions parents ask us, and we keep improving it with your feedback. Whether or not your child’s condition is well-known, Learn Without Limits is here for your family – every step of the way.

Share Your Story and Shape ALN Support

Parents and young people in our community: your experiences matter. We want to hear from you. By sharing what your family has been through, you help us improve our blog content, chatbot answers and app resources so that they speak to your needs. Together we can make sure future information and tools truly reflect life with dyspraxia, CP, rare conditions or any less-visible ALN.

  • Share your experience: Contact us via our website or Facebook group to tell your child’s ALN journey. (You can be anonymous if you prefer.) Your story might inspire a future blog post or guide, and will show other families they are not alone.

  • Improve our tools: Try our Parent Guide App and chatbot. Ask questions or suggest new topics. If an answer misses something important to you, let us know. We’ll use your feedback to update our app content and chatbot so they meet your real needs.

  • Join the conversation: Follow Learn Without Limits on social media, attend an online Q&A or local meetup, and connect with other ALN families. When we share resources and advice, everyone benefits.

Join the Mission for Equal Support

Every child with ALN in Wales deserves fair support – not just those with the most visible conditions. By sharing your voice and experiences, we can change the system together. Learn Without Limits CIC invites you to get involved in our mission for equal support: whether by using our resources, contributing your story, or even volunteering. Together we can make Wales a place where no ALN family stands alone. Join us, and help ensure that all families navigating ALN in Wales have the guidance, care and community they need to help their children thrive.

How to get an assessment from child disability social care (Wales).

 

How to get an assessment for your child from child disability social care (Wales)

Many parents know long before any service becomes involved that their child’s disability is affecting daily life. What is often unclear is how to access child disability social care, what triggers an assessment, what support it can and cannot provide, and how long things are supposed to take.

This guide explains how the system works in Wales, who can ask for an assessment, what ages are covered, how adaptations and support are arranged, and what happens as children approach adulthood.

The aim is clarity. Clear information early can prevent crisis later.


What is child disability social care?

Child disability social care sits within your local authority’s children’s services. Its role is to assess whether a disabled child and their family need care and support under the Social Services and Well-being (Wales) Act 2014.

It does not diagnose conditions and it does not replace education provision. Social care focuses on how disability impacts everyday life, family wellbeing, safety, and the sustainability of care.

Support may include:

  • short breaks or respite

  • practical help in the home

  • direct payments or a personal budget

  • family support services

  • planning for the transition to adulthood


Who can ask for an assessment?

In Wales, any of the following can request a child disability assessment:

You do not need a diagnosis first.
You do not need school permission.
You do not need to wait until things fall apart.

If disability is affecting your child’s wellbeing or your family’s ability to cope, you are entitled to ask.


How to request an assessment

Contact your local authority children’s services and ask for:

a care and support assessment for a disabled child under the Social Services and Well-being (Wales) Act.

You can do this by phone, online form, or email. If writing, keep it factual and focus on impact, not labels.

Helpful examples include:

  • constant supervision needed for safety

  • inability to leave the house safely

  • severe sleep disruption affecting the family

  • distress at school spilling into home life

  • significant impact on siblings

  • parental exhaustion affecting wellbeing

This is not the moment to minimise or put on a brave face.


What happens next?

The local authority may:

  • carry out initial screening

  • ask follow-up questions

  • request reports

  • speak to school or health professionals

If needs appear significant, this should move to a full assessment.

A full assessment usually involves:

  • discussing daily routines

  • understanding what is hard and why

  • identifying what support is already in place

  • exploring what would reduce risk or pressure

Outcomes may include:

  • no further action with signposting

  • short-term support

  • ongoing services

  • direct payments or a personal budget

  • transition planning


Timescales: what parents should realistically expect

Waiting is often the hardest part.

In Wales, there are no fixed statutory deadlines for child disability social care assessments. The law requires local authorities to act promptly, proportionately, and within a reasonable timescale, based on the level of need and risk.

This flexibility exists so that urgent situations can be addressed quickly and more complex situations can be assessed properly.

In practice, many local authorities work to internal benchmarks such as:

  • initial screening within a few weeks

  • full assessment completed over several further weeks once accepted

These are practice expectations, not legal guarantees. What matters is whether the authority is:

  • actively progressing the assessment

  • communicating with you

  • able to explain any delay

Where needs are urgent or family wellbeing is deteriorating, support can be put in place before a full assessment is completed.


Personal budgets and direct payments: managing expectations

A personal budget is not compensation and not an open-ended fund. It exists to meet assessed care and support needs.

It may cover:

  • short breaks or respite

  • support workers for care needs

  • activities linked to wellbeing or safety

  • support that helps sustain family life

It will not usually cover:

  • education costs

  • private therapy replacing NHS provision

  • school tuition or tutors

  • general household costs

  • support unrelated to assessed need

Social care must be able to show that any funded support meets identified need and represents appropriate use of public funds. Clear expectations early help prevent disappointment later.


What social care cannot do (and why this matters)

Being clear about limits can prevent frustration and conflict later on.

Child disability social care cannot:

  • diagnose medical or developmental conditions

  • replace NHS health services

  • fund education, tuition, or school-based provision

  • provide private therapy in place of NHS pathways

  • resolve disputes with schools

  • act as an enforcement body for other services

Social care’s role is to assess care and support needs and consider what support may reduce risk, sustain family life, and promote wellbeing.

When expectations are aligned early, assessments are usually more constructive and less emotionally draining for everyone involved.

_______________________________________________________

Home adaptations and specialist equipment

Home adaptations and specialist equipment are arranged through a joint health and social care process.

Children’s Occupational Therapy (OT) assesses the child and identifies what adaptations or equipment are needed and why, based on safety, access, and daily functioning.

Once OT recommendations are made, social care is responsible for funding and arranging the equipment, adaptations, or building work.

Parents can usually self-refer to children’s OT via their local health board website. OT determines need. Social care delivers the practical provision.


Education and transport: where responsibility sits

Transport is a common source of confusion.

  • Up to age 16, school transport is usually managed by the local authority education department.

  • Post-16, arrangements vary.

  • Where a young person has ongoing care needs, adult social care may become responsible for transport as part of a care and support plan.

  • College transport is often assessed separately and is not automatic.

As your child approaches 16, it is reasonable to ask:

  • who is responsible for transport

  • when responsibility changes

  • how arrangements will be reviewed during transition

Do not assume provision will roll over without reassessment.


Ages and transition to adult social care

Adult services:

  • focus more on the individual than the family

  • apply different eligibility criteria

  • often feel more functional and less relational

Early planning helps prevent gaps.


Team Around the Family (TAF): what parents should know

A Team Around the Family meeting is intended to coordinate support and prevent escalation. It is not automatically a child protection process.

However, it is a point where parents should be attentive.

Parents are entitled to:

  • know why a TAF is being called

  • see the agenda

  • understand what concerns are being addressed

  • ask what would escalate involvement and what would close it

If the focus remains on support and unmet need, TAF is working as intended. If language shifts towards monitoring or parental blame, it is reasonable to ask for clarity and to keep records.


If things stall: what parents can do

If progress feels slow, follow up calmly. Delays often reflect workload pressures rather than decisions about your child.

You can ask:

  • what stage the assessment is at

  • what information is outstanding

  • who the allocated worker or team is

  • when the situation will be reviewed

A brief written follow-up is often helpful. For example:

I am checking in to understand where we are in the assessment process and what the next steps and likely timescales are. Our child’s needs remain significant and we want to ensure matters continue to move forward.

Seeking clarity is not being difficult. It is part of working constructively with services.


Who does what? A quick guide for parents (Wales)

AreaWho is responsibleWhat they doWhat they do not do
Child disability assessmentChildren’s social careAssesses need for care and supportDiagnose conditions or provide education
DiagnosisNHS health servicesAssess and diagnoseDecide social care eligibility
Occupational TherapyNHS OT serviceIdentifies needed adaptations and equipmentFund or install adaptations
Home adaptations and equipmentSocial careFunds and arranges provision following OT adviceDecide clinical need
Personal budgetsSocial careFunds assessed care and support needsCover education or unrelated costs
School transport under 16Education departmentAssesses and provides transportContinue provision post-16
Post-16 transport (where care needs exist)Adult social careMay fund transport as part of care planAutomatically roll over school transport
Transition planningChildren’s and adult social carePlan transition from around 14Guarantee identical support post-18
TAF meetingsMulti-agencyCoordinate supportAct as child protection without clarity

A note on carers’ assessments

When a child has significant additional needs, parents and carers are often carrying far more than they realise.

Under Welsh law, parents and carers are also entitled to an assessment in their own right if caring is affecting their wellbeing. This is known as a carer’s assessment.

A carer’s assessment looks at:

  • physical and mental health

  • exhaustion and sleep

  • ability to work or study

  • impact on relationships

  • sustainability of the caring role

You do not need to be at breaking point to ask. In fact, asking earlier can help prevent crisis.

Carer support may overlap with child support, but it can also stand alone. It is reasonable to ask whether a carer’s assessment would be appropriate alongside your child’s assessment.

______________________________________________________


Final reassurance

Requesting a child disability social care assessment is not a failure and not an accusation. It is about recognising when disability affects family life to the point where early support can prevent crisis later on.

If you feel you are carrying too much, that feeling is usually valid.


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Further reading and source guidance (Wales)
The links below are official Welsh Government and NHS guidance for parents who want to understand the legal and policy framework behind child disability social care.


Social Services and Well-being (Wales) Act 2014 (Law Wales hub)
https://law.gov.wales/social-services-and-well-being-wales-act-2014

Further legislation, codes and guidance made under the Act (Law Wales hub)
https://law.gov.wales/social-services-and-well-being-wales-act-2014-further-legislation-codes-and-guidance-made-under-act

Assessing care and support needs of individuals: Code of Practice (Gov.wales page)
https://www.gov.wales/assessing-care-and-support-needs-individuals-code-practice

Part 3 Code of Practice PDF (direct)
https://www.gov.wales/sites/default/files/publications/2019-05/part-3-code-of-practice-assessing-the-needs-of-individuals.pdf

School transport (Gov.wales topic hub)
https://www.gov.wales/school-transport
Home to school transport risk assessments guidance (PDF)
https://www.gov.wales/sites/default/files/publications/2018-03/guidance-on-home-to-school-transport-risk-assessments.pdf
Learner travel operational guidance 2025: consultation (Gov.wales)
https://www.gov.wales/learner-travel-operational-guidance-2025

National multi-agency practice framework for children’s services (Gov.wales HTML)
https://www.gov.wales/national-multi-agency-practice-framework-childrens-services-html
Families First: guidance for local authorities (PDF)
https://www.gov.wales/sites/default/files/publications/2019-07/families-first-guidance-for-local-authorities_0.pdf


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Learn Without Limits CIC provides general information and guidance only. We do not provide legal or medical advice. Families should seek advice from appropriate qualified professionals where needed


⭐ Specialist Interventions Under EOTAS in Wales Part 2: How to Access Support, What is State Provided, and What Requires Tribunal

 

⭐ Specialist Interventions Under EOTAS in Wales



📘 This is Part 5 of a 5-part series on EOTAS in Wales.

⬅️ Previous: Part 4 – Specialist Interventions Under EOTAS  

https://learnwithoutlimitscic.blogspot.com/2025/12/specialist-interventions-under-eotas-in.html

🔄 Start again at Part 1 – Introduction to EOTAS  

https://learnwithoutlimitscic.blogspot.com/2025/12/eotas-in-wales-part-1.html


Part 2: How to Access Support, What is State Provided, and What Requires Tribunal

When parents discover the range of interventions that exist, the next question is always the same:

How do we actually get this for our child in Wales?

This section explains the practical routes to support, what the NHS and Local Authorities can provide, what relies on the private sector, and how to gather evidence so that decisions are made fairly. It is honest, clear and rooted in lived experience.


⭐ 1. What the NHS can provide

NHS Wales is responsible for health based interventions. These are usually delivered free of charge and can be written into a child’s IDP if they are essential for accessing education.

NHS services commonly involved with EOTAS learners include:

✔ Occupational Therapy

Assessment and advice.
Direct therapy is limited and sensory therapy is rarely delivered.

✔ Physiotherapy

Support for mobility and physical conditions.

✔ Speech and Language Therapy

Assessment, communication support, feeding advice, AAC recommendations.

✔ Community Paediatrics

Medical oversight, diagnosis, letters supporting educational decisions.

✔ CAMHS or Neurodevelopmental Services

Assessment of mental health and autism or ADHD.
They do not provide education but their letters carry significant weight.

✔ Nurses specialising in chronic conditions

For example, Long Covid, ME or fatigue based conditions.

✔ Vision or hearing support through health linked teams

Including audiology and ophthalmology.

What parents need to know:
NHS provision is free but often limited by capacity. If a child needs more frequent therapy than the NHS can deliver, this is where private practitioners or Tribunal may become relevant.


⭐ 2. What Local Authorities can commission

Local Authorities are responsible for ensuring a child receives suitable education. This includes commissioning specialist interventions when they are required for educational access.

Local Authorities may commission:

✔ EOTAS tutors with specialist skills

For anxiety informed teaching, literacy support, or autism informed practice.

✔ Outdoor therapeutic learning

Woodland programmes, emotional wellbeing sessions, forest school.

✔ Alternative provision centres

Small therapeutic settings or vocational programmes.

✔ Third sector interventions

Play therapy, mentoring, community education, life skills.

✔ Online tuition

Short sessions based on stamina and need.

✔ Specialist teachers for vision or hearing impairment

Provided through LA sensory teams.

✔ One to one SALT or OT sessions if Tribunal directs it

Rare unless ordered through appeal.

Important note:

Local Authorities usually only commission what is:

  • available locally

  • affordable

  • demonstrably needed

  • recommended by professional reports

Parents do not get to choose the provider, but they can challenge unsuitable provision.


⭐ 3. What is almost always private

These interventions are rarely commissioned unless Tribunal orders them:

  • ABA

  • DIR Floortime

  • Son Rise

  • Music therapy

  • Art therapy

  • Play therapy

  • Daily sensory integration therapy

  • Daily psychology sessions

  • Daily mentoring

  • Specialist dyslexia tuition (in many counties)

  • Specialist mental health coaching

  • Animal assisted therapy

  • Neurofeedback

  • Intensive home programmes

Parents can access these privately or through charity grants, but Local Authorities rarely fund them voluntarily.


⭐ 4. When Tribunal becomes the only route

Tribunal becomes relevant when the Local Authority:

  • refuses to provide a needed intervention

  • refuses EOTAS

  • provides too little therapy

  • insists on reintegration without evidence

  • ignores medical information

  • offers unsuitable provision

  • will not fund specialist support despite clear recommendations

Tribunal decisions are evidence based.
The more precise the reports, the stronger the case.


⭐ 5. How to gather evidence for specialist interventions

Families often worry that they do not know what “counts” as evidence. In Wales, the strongest sources are:

✔ Reports from NHS specialists

Even short letters are powerful.

✔ Educational psychology assessments

These explain how the child learns and what provision is required.

✔ Occupational therapy evidence

Especially when linked to functional access to learning.

✔ Speech and Language Therapy reports

Particularly where communication barriers affect education.

✔ Tutor feedback

Useful if the child is already engaging with home tuition.

✔ Parent diaries

These provide patterns that demonstrate difficulty over time.

✔ Child voice

Tribunal places real weight on the views of the young person.

We will include parent friendly templates for evidence collection in Part 2.


⭐ 6. Why some families choose grant funded private support instead of Tribunal

It is important to say this gently and honestly:

For some families, applying for a grant to fund the needed support is far less stressful than pursuing a Tribunal appeal.

Tribunal can be:

  • slow

  • exhausting

  • confrontational

  • emotionally draining

  • unpredictable

Grant funding and third sector support can bridge the gap while statutory processes catch up.

Families in crisis deserve practical options, not pressure.


⭐ 7. How to check if a private provider is safe and suitable

Parents should ask:

  • Are you qualified in your field

  • Are you registered with a professional body

  • Do you have insurance

  • What safeguarding policies do you follow

  • Do you work respectfully with autistic or disabled children

  • What feedback have other parents given

  • Are your claims realistic

  • Can you meet my child where they are emotionally

  • Is the cost sustainable

And this is where our peer support network comes in really handy for informal support and to get  for honest feedback about private or charity sector providers. Parents will tell you what worked, what did not, and whether the service genuinely helped their child.
 https://www.facebook.com/groups/learnwithoutlimitscic

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Part 2: How to Access Support, What Is State Provided, and What Requires Tribunal

Section 2: What Local Authorities Look For When Approving Specialist Interventions

Understanding how Local Authorities think is one of the most powerful tools a parent can have. It removes mystery, reduces fear and helps families prepare strong evidence.

Although each Local Authority in Wales has its own internal processes, their decision making tends to follow predictable patterns. This section explains what panels look for in real life, not just in policy documents.


⭐ 1. Clear evidence that the child cannot access education without this intervention

Local Authorities look for:

  • patterns of distress

  • shutdowns or meltdowns

  • sensory overload

  • refusal rooted in fear, not defiance

  • post exertional crashes

  • severe anxiety

  • medical symptoms

  • dysregulation linked to the school environment

If the evidence shows the child cannot access education safely or meaningfully without specialist support, this strengthens the request.


⭐ 2. Professional recommendations

Panels pay close attention to:

  • educational psychology assessments

  • occupational therapy advice

  • speech and language therapy reports

  • medical letters

  • CAMHS or paediatric recommendations

These do not have to be long.
Even short statements can change outcomes.

Local Authorities do not expect parents to write a professional justification. A few lines from a clinician can carry more weight than pages of narrative from a family.


⭐ 3. Attempts that have already been made

Panels want to see that school based strategies were tried where appropriate, unless the child is too unwell for this to have been safe.

They consider:

  • reduced timetables

  • sensory adjustments

  • behaviour plans

  • quiet spaces

  • one to one support

  • differentiated tasks

  • previous tuition

  • staged reintegration attempts

If all reasonable steps have failed, this strengthens the case for specialist intervention.


⭐ 4. A clear link between the intervention requested and the child’s needs

Local Authorities do not approve interventions simply because they exist.
They approve them when there is a clear connection between:

  • the child’s needs

  • the barriers to learning

  • the recommended intervention

  • the expected outcomes

For example:

The panel must be able to say:
This provision meets this need.


⭐ 5. Availability of the intervention

Even when an intervention is appropriate, it can only be offered if a provider exists locally or online. Panels take into account:

  • staffing levels

  • existing contracts

  • waiting lists

  • travel distance

  • tutor availability

This is why some families are directed toward blended or alternative options that meet the need but in a different form.


⭐ 6. Cost and proportionality

Local Authorities are legally required to provide suitable education.
They are also required to consider proportionality.

Panels sometimes decline very expensive packages when a more modest intervention could meet the need. This does not mean the child does not deserve support. It means the panel must balance need with resource.

For example:

  • full ABA programmes costing tens of thousands are almost never approved

  • weekly sensory integration therapy is rarely funded

  • intensive daily tutoring is unusual

Panels are more likely to approve:

  • tailored online tuition

  • therapeutic tutors

  • specialist literacy support

  • outdoor learning

  • targeted SaLT or OT input

  • hybrid packages

Understanding this helps parents shape realistic requests.


⭐ 7. The child’s voice

The ALN system in Wales requires that the child’s views are considered.
Tribunal also places great weight on this.

Panels look for:

  • what the child says helps them

  • what overwhelms them

  • why school is difficult

  • where they feel safe

  • how they prefer to learn

This can be expressed through:

  • drawings

  • video clips

  • spoken words

  • writing

  • parent scribing

  • professionals who know the child

Child voice does not need to be perfect. It just needs to be honest.

___________________________________________________________________________________

Section 3: How to Request a Specific Intervention in the IDP

Requesting a specialist intervention is not simply a matter of saying what you want. The ALN system in Wales requires Local Authorities to consider need first, then decide what provision is necessary to secure suitable education.

This section explains how to frame a request so that:

  • the need is clear

  • the provision logically follows

  • the Local Authority can approve it

  • you avoid common refusal traps

It also includes suggested wording you can use directly in your IDP review.


⭐ 1. Start with the need, not the intervention

One of the most common mistakes parents make is to begin with a phrase like:

“I want my child to have play therapy”
or
“We want outdoor learning”

Panels tend to refuse these requests because the law requires them to look at needs, not preferences.

A more effective approach is:

“My child needs support with communication and emotional regulation. The current environment is overwhelming and prevents them from engaging safely. A therapeutic intervention that supports regulation and connection is required.”

Then, once the need is established:

“One option that would meet this need is play therapy. I would like the Local Authority to consider this as part of the IDP review.”

This moves the conversation from want to need, which is far harder for a panel to dismiss.


⭐ 2. Show the link between the need and the proposed intervention

Local Authorities must be able to justify why they agree to a particular intervention.
You can help them by drawing a clear line between:

✔ the barrier

✔ the need

✔ the provision

Examples:

Barrier: Child experiences sensory overload and becomes distressed in classrooms.
Need: Regulation strategies and sensory support.
Provision: OT designed regulation programme, tutor trained in sensory aware practice.

Barrier: Child cannot process spoken language under stress.
Need: Supported communication.
Provision: SaLT input, AAC strategies.

Barrier: Severe anxiety prevents attendance.
Need: Therapeutic learning in a safe setting.
Provision: Therapeutic tutor or outdoor learning programme.

When the chain is logical, approval is much more likely.


⭐ 3. Use neutral and factual language

Avoid emotional or adversarial statements, even when you feel desperate.

Not helpful:

  • “School has failed my child.”

  • “Nobody is listening.”

  • “We demand this therapy.”

Helpful:

  • “Despite many attempts, my child remains unable to access education in the current setting.”

  • “Here is the evidence that shows ongoing difficulty.”

  • “This intervention would directly address the barrier identified.”

Calm, factual wording keeps the focus on your child and reduces defensiveness in decision making.


⭐ 4. Bring supporting evidence to the IDP review

Panels rely heavily on written recommendations.
You do not need a twenty page report. A short statement is enough.

Useful sources include:

  • GP letter

  • CAMHS letter

  • OT advice

  • SaLT report

  • educational psychology assessment

  • tutor feedback

  • nurse letter

  • parent diary showing patterns

  • child voice

If evidence shows the child is not coping and an intervention is needed, the panel must consider it seriously.


⭐ 5. Ask for the intervention to be written into Section 2 of the IDP

Section 2 is the provision section.
If the intervention is not written here, it is not formally agreed.

You can say:

“I would like the intervention we discussed to be recorded in Section 2 of the IDP, along with who will deliver it, how often, and how progress will be reviewed.”

This prevents vague commitments such as:

  • “We will explore options”

  • “We will monitor this”

  • “We will consider support”

You want:

  • clear provision

  • clear frequency

  • clear responsibility

For example:

“One to one therapeutic tutoring for one hour per week delivered by an anxiety informed tutor.”

or

“Outdoor learning for two sessions per week delivered by a commissioned provider.”


⭐ 6. Helpful wording to include in your request

Parents often ask for exact phrases that avoid refusal traps.
Here are options you can use:

To request consideration:

“Please can the Local Authority consider whether a specialist intervention is now required to secure suitable education for my child.”

To link need and provision:

“The evidence shows that my child’s difficulty stems from sensory overload and emotional distress. A specialist intervention that supports regulation is required.”

To strengthen the request:

“This intervention is recommended in professional advice and directly relates to the needs identified in Section 1.”

To ensure clarity:

“If approved, please can this provision be written clearly in Section 2 with details of delivery, frequency and who is responsible.”


⭐ 7. What a refusal usually looks like

Local Authorities tend to refuse requests when:

  • the need is not clearly described

  • the intervention does not link directly to the need

  • school based adjustments have not been tried

  • evidence is missing

  • the request seems preference led

  • the cost is disproportionate

  • the panel believes the need can be met another way

Knowing this helps you prepare a stronger case from the start.


⭐ 8. The most effective strategy

The strongest requests are:

  • calm

  • factual

  • structured

  • linked directly to evidence

  • written down

  • supported by professionals

  • tied to a clear barrier

  • focused on meeting need

Parents do not need to know the policy language or legal jargon.
You only need to show the picture clearly and anchor it in real evidence.

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Section 4: How to Challenge a Refusal and When Tribunal Becomes Necessary

Not every request for a specialist intervention is approved on the first attempt.
This does not mean the request was wrong or unreasonable.
It usually means one of three things:

  1. the Local Authority believes the evidence is not yet strong enough

  2. the link between need and provision was not clear enough

  3. a cheaper or more available option is being considered first

This section explains how to challenge a refusal in a calm and strategic way that keeps the focus on your child.


⭐ 1. Read the refusal letter carefully

A refusal should explain:

  • why the Local Authority disagrees

  • what evidence they used

  • what they believe meets the need instead

  • what steps they expect next

Parents often skim these letters because they are upsetting, but hidden inside them are clues that help you build your next step.

Look for phrases such as:

  • “insufficient evidence”

  • “not demonstrated”

  • “needs can be met through school based support”

  • “awaiting further advice”

  • “not proportionate at this time”

Each phrase points to a gap you can fill.


⭐ 2. Ask for an IDP review to consider the evidence again

Under the ALN Code, you can request an IDP review at any time.
A simple written request is enough.

Suggested wording:

“I am requesting an IDP review to reconsider the intervention that was declined. I have new evidence that I would like the team to take into account.”

Local Authorities cannot ignore review requests. They must engage.


⭐ 3. Strengthen the evidence before you return

You rarely need a brand new twenty page report.
You just need clearer evidence.

You can gather:

  • a short letter from a GP

  • an updated CAMHS or nurse statement

  • a brief note from a tutor showing ongoing difficulty

  • parent logs showing patterns

  • a short OT or SaLT update

  • child voice showing why learning is still not possible

Tribunal panels repeatedly say:
Short letters that state the difficulty clearly are the most useful evidence.


⭐ 4. Ask the Local Authority to explain what evidence would change the decision

Parents are often afraid to ask this, but it is completely allowed and often very helpful.

You can write:

“Thank you for your decision. Please can you tell me what evidence would be needed for the Local Authority to reconsider approval for this intervention.”

This forces clarity and often reveals a very manageable next step.

It also stops you wasting time gathering irrelevant evidence.


⭐ 5. Use calm factual challenge language

Avoid emotional language even when you feel upset.
Panels respond best to calm clarity.

Useful lines:

“Thank you for the explanation. I would like to understand how the proposed provision is expected to meet the need described in Section 1.”

“I cannot see how this provision addresses the barrier identified. Please can you explain the reasoning so that I can better understand the decision.”

“Here is updated evidence that shows the need remains unmet.”

This keeps the responsibility where it belongs: on the Local Authority to justify its reasoning.


⭐ 6. When escalation inside the Local Authority is appropriate

Before Tribunal, there are internal steps that often resolve things faster.

You can escalate to:

  • the ALN manager

  • head of inclusion or education

  • complaints team if process is not followed

  • the ALN partnership team

Escalation is not being difficult.
It is using the system in the order the law expects.

When you escalate, keep your tone neutral. Short messages work best.


⭐ 7. When it is time to involve Tribunal

Parents often wait too long to appeal.
Tribunal is appropriate when:

  • the need is clear

  • evidence supports the intervention

  • the Local Authority will not approve it

  • the child is unable to access education

  • delays are causing harm

  • internal escalation has failed

You do not need a lawyer.
You do not need perfect paperwork.

What Tribunal wants is:

  • clear evidence of the need

  • clear evidence that the Local Authority provision is not suitable

  • professional support where available

  • calm factual presentation

Tribunal can order:

  • specific interventions

  • specific frequency

  • named providers

  • specialist placements

  • changes to Section 1 and Section 2 of the IDP

Tribunal is not a punishment.
It is a safety valve built into the ALN system.


⭐ 8. Evidence that carries the most weight at Tribunal

Tribunal judges consistently say these are the most persuasive forms of evidence:

✔ Child voice

Especially when it describes fear, sensory overload, burnout, or physical impact.

✔ Medical or mental health letters

Even short statements from GPs explaining fatigue, anxiety, or medical needs.

✔ educational psychology reports

Clear assessments showing the child cannot learn in the current format.

✔ OT or SaLT advice

Showing how the environment affects the child’s functioning.

✔ logs showing repeated failed attempts

This proves the difficulty is not a one off event.

✔ data showing harm or regression

Tribunal prioritises safety and wellbeing.


⭐ 9. Pitfalls that parents should avoid

These make approval or Tribunal success harder:

  • requesting an intervention without linking it to need

  • presenting too much emotional narrative without evidence

  • asking for provision that is not realistic or proportionate

  • not updating Section 1 before requesting Section 2 changes

  • relying solely on personal preference

  • waiting many months before escalating

  • allowing the Local Authority to delay without challenge

Parents often think they need to be perfect.
You do not.
You just need to be clear.


⭐ 10. The goal is suitability, not perfection

The ALN Code says the child must receive suitable education.
This does not always mean the perfect therapeutic dream package.
It means a provision that:

  • meets the need

  • supports progress

  • protects wellbeing

  • is deliverable

When the need is clear and the evidence is solid, the Local Authority or Tribunal will approve the right intervention.

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Section 5: Templates, Escalation Tools and How to Keep Interventions Under Review

This section gives parents practical tools to use right away.
Everything here is written in everyday language and can be pasted into emails or IDP reviews without any legal jargon.


⭐ 1. Template: Requesting consideration of a specialist intervention

You can use this wording during an IDP review or by email.

Subject: Request for IDP Review to Consider Specialist Intervention

Message:
Thank you for the support provided so far. I am requesting an IDP review to consider whether a specialist intervention is now required to secure suitable education for my child.

The current provision has not been enough to address the barriers described in Section 1. I have attached updated evidence and observations that show ongoing difficulty.

Please can we discuss options and record any agreed provision in Section 2 of the IDP.

Kind regards,
[Your Name]


⭐ 2. Template: Linking need and provision

Message:
The evidence shows that my child is finding it difficult to [describe need such as regulate, communicate, attend, engage, tolerate sensory input]. This difficulty continues even with the adjustments already in place.

A specialist intervention that directly addresses this need is required. One option that meets this need is [name intervention]. I would be grateful if the Local Authority would consider this as part of the IDP process.


⭐ 3. Template: Challenging a refusal

Message:
Thank you for your decision. I would like to understand how the proposed provision is expected to meet the need described in Section 1. I cannot see how the alternative provision addresses the barrier identified.

I have attached updated evidence which shows the need remains unmet. Please can we arrange a further review to consider this.

Kind regards,
[Your Name]


⭐ 4. Template: Asking what evidence would change the decision

Parents rarely use this wording, yet it is one of the most effective tools you have.

Message:
Thank you for the explanation. Please can you let me know what evidence the Local Authority would need in order to reconsider approval for this intervention.

This helps me understand what next steps are required.

Kind regards,
[Your Name]


⭐ 5. Template: Escalating to ALN Manager or Head of Inclusion

Use this after you have tried review and clarification.

Subject: Request for Senior Review of IDP Decision

Message:
I am requesting senior review of the recent IDP decision. I have followed the usual process but remain concerned that the provision does not meet the needs recorded in Section 1.

The attached evidence shows that my child is unable to access suitable education without further intervention. I would be grateful if this could be reviewed by a senior officer so that a clear way forward can be agreed.

Thank you for your time,
[Your Name]


⭐ 6. What to do when there is no provider available

This is a common problem in Wales. Panels may say:

  • “We agree in principle but we do not have a provider.”

  • “There is no local tutor available.”

In this case, you can say:

Message:
Thank you for confirming that the intervention is appropriate. Please can the Local Authority record in Section 2 that the provision has been approved but is currently awaiting allocation.

Please can we also agree temporary arrangements so my child is not left without support while we wait for a provider.

This prevents the Local Authority from closing the request and ensures the need remains active.


⭐ 7. How to avoid delay tactics

Common delay tactics include:

  • repeated monitoring reviews

  • requests for evidence that already exists

  • long periods without updates

  • not confirming decisions in writing

You can counter these by:

  • keeping communication in writing

  • asking for dates and timelines

  • confirming agreements after meetings

  • requesting IDP reviews at clear intervals

The ALN Code expects the IDP to be a living document.
You can update it as often as needed.


⭐ 8. Ensuring interventions remain under review

A common issue is that interventions are added to the IDP but not delivered consistently.
Parents can ask for:

  • clear frequency

  • named provider

  • start date

  • review date

  • success criteria

During reviews you can ask:

  • Is the intervention delivered as written

  • Is my child accessing it

  • Is it meeting the need

  • What does the tutor or therapist report

  • Does the child feel it helps

If it is not working, the Local Authority must adjust the IDP.


⭐ 9. When Tribunal becomes the right step

Tribunal is usually the correct path when:

  • needs are clearly unmet

  • the Local Authority refuses appropriate intervention

  • delays are causing regression

  • evidence is strong

  • internal routes have been exhausted

Most parents win Tribunal appeals in Wales because they are simply asking for the education their child needs.

Tribunal can order:

  • EOTAS

  • named interventions

  • change of placement

  • medical needs tuition

  • sensory support

  • therapeutic tutoring

  • SaLT or OT hours

  • online learning packages

  • specialist programmes

Tribunal decisions are legally binding.


⭐ 10. Final message to parents

Parents often feel powerless when asking for specialist help.
But the truth is this:

When the need is clear, the system has to respond.
Your role is to shine a calm steady light on that need.

You do not have to be a legal expert.
You do not need complicated reports.
You only need clarity, evidence, and steady persistence.

You know your child best.
And you are not alone.

✦ Upcoming free session

If you’d like live support or want to ask questions directly, join our EOTAS in Wales — Online Parent Clinic this Monday (free).
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